The impact of shared care on children with cancer: RESULTS (part 4)

Participants spoke of the difficulties experienced in making the transition from the home environment to that of the larger oncology setting, making reference to a number of issues. Parents, for example, noted that activity had been very intense during the initial work-up for the referral to southern Ontario, creating an expectation that the momentum would continue. In contrast, upon arriving at the larger centre, the perception was that everything slowed down and there was not the same sense of urgency.This was somewhat disconcerting, since parents did not know how to interpret the change in pace and had some trouble coming to terms with the realization that, at the larger centre, their child was only one of many. “You need to make a ‘mental adjustment’ between the centres, there was so much activity in his room here [in Thunder Bay] and then you get there and you can’t get anywhere … you know you get those kinds of extremes. It’s hard. It’s hard to make the change.”

One participant spoke of finding himself in some sort of ‘holding pattern’ and of suddenly coming to terms with the fact that his child was one of many ‘little fish’, quite an adjustment after having been the ‘big fish’ back home. Another commented that, “You don’t get the attention there that you get here [in Thunder Bay] because it’s one to one here and one to two hundred down there.” It might have been enough to have forewarned these parents that things would take on a different pace and intensity, and that they were not to be unduly anxious or alarmed. Shop online with the best pharmacy that will ensure high quality of your medications and will offer cheapest Cheap Asthma Inhalers Online with no rx required any time you need this or any other one for your medical problem.

For example, each child has personal preferences for the way in which procedures are carried out, which should be shared between the treatment centres. As one parent noted, “You know it’s like two different worlds. Here, she was lying down. She was washed, washed, and washed and then accessed. In Toronto, she is sitting on my lap, just washed and in and out.”

This entry was posted in Cancer and tagged Continuity of care, Family, Paediatric oncology, Shared care, Travel.